Tuesday, May 25, 2010

Cheeky program in controversial soup

Freshmen of the College of Letters and Science at University of California, Berkeley have a unique thing in their welcome kit this year....a cotton swab!

The Same Page program of this college gives new students something to talk about and discuss, say something like a book or a movie or an idea. This year, they’ll be exploring the theme of Personalized Medicine—the set of emerging technologies that promises to transform our ability to predict, diagnose, and treat human disease. Therefore, the cotton swab. Students can choose to return a sample of their cheek cells to be analyzed for three genes that are identified as "useful" for daily lives......the genes that help regulate the ability to absorb folic acid, tolerate lactose, and metabolize alcohol. Results of this nutritional genomic study will be confidential, however the sample donors through secret codes can access results of their samples.

Professor Jasper Rine, in-charge of this project, says “We want to get people to appreciate that there are things you can do that enhance your health based on the genes you have. There are concrete, actionable, specific steps that do enhance quality of life. This is the message of the post-genomic era.” Students will also get the chance to enter contests of creativity and talent and winners will be offered a more complete genetic analysis of their ancestry and health, with compliments from the personal genomics company 23andMe.

Medical science and biotechnology post the "Human Genome Project" is aiming towards better health care and effective clinical solutions. Though today, personalized medicine seems like a Utopian dream, hopefully someday it will be cost-effective and bring therapeutics suited to individual needs and responses.

This project, however, is not without it's share of controversies. Following a ban by FDA on retail selling of personal-genome-testing kit by Walgreens ( a US based drugstore chain), a Berkeley-based public interest organization is calling for the suspension of the UC project. They say "If selling genetic tests directly to consumers is a problem in the eyes of federal regulators, how can the University justify pushing them on thousands of eighteen-year-olds?"

The kit with the swab includes a consent form and details of the study to be undertaken, the advantages of the program and a confidentiality statement assuring prevention of misuse of genetic information. Where is the abuse??? If the donors consent to give samples for research, understanding what they are signing-up for....then why not?? Surveys and sample collections anyway take place for various research programs across the world...then why not this?? People can, for a minimal fee, send their DNA samples to laboratories for testing and genetic analysis, so why not allow the sale of these kits? Is it not up to the customer to think what they want, need, require and find useful??

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